November 9-14th
Paxton was sick on and off the whole week of November 9, in and out of the doctor's offices and hospital in Rock Springs until they figured out something was very wrong. He was life flighted from the hospital in Rock Springs, Wy to the Primary Children's Hospital in Salt Lake City, Ut where he was diagnosed with ALL.
January 2021
Paxton was released from the hospital in Salt Lake City. He reunited with his big sister after weeks of separation. He was released with an IV treatment that was administering continuous chemo while he's home with his family in anticipation of his life saving bone marrow transplant. .
February 9, 2021
Big sister Karly was tested and results came back, she is a POSTIVE MATCH for Paxton's bone marrow!!!!
Preparing for a transplant, Paxton was put on a chemotherapy that is 24/7 IV drug and is able to be home receiving the medicine from a portable chemotherapy pump.
He had a bone marrow biopsy February 9th to see if the IV chemotherapy cleared out his bone marrow. If the results come back negative, his oncologist is hoping to start the transplant process as soon as possible which includes his sister having to go through some testing and then her bone marrow will be extracted and prepared for Paxton.
February 13, 2021
Paxton's biopsy didn't come back MRD- which we were hoping for. He has 3% blasts still (at the beginning of this last drug, he was at 55% so the drug worked well, he just has soo much to clear out).
This means that he can't transplant yet. The next step is now a process called CAR-T therapy. Over a month ago, they extracted Tcells from Paxton and sent them to a lab on the east coast to be genetically re-engineered to attack cancer cells.
Paxton will be admitted February 19th to undergo 4 days of chemo therapy to clear out his current Tcells to make room for the genetically re-engineered Tcells infusion. The infusion is outpatient and will be a few days after his 4 day chemo round is done.
After the Tcell infusion, Paxton will have appointments every Monday, Wednesday and Friday at Primary Children's for approximately 28 days. Because of the frequency, Paxton and Tiffany will be staying in Salt Lake City for the next month and Patrick and Karly will visit on weekends.
February 26, 2021
Patrick, Tiffany, and Paxton got settled into the condo they’re staying in (thank you to friends back in Rock Springs who offered their condo!) in Salt Lake City. Paxton got his Tcell infusion this morning so the 28 day process starts today! Paxton is expected to get cytokine release syndrome within the next few days in which he will be admitted into the hospital until his body can fight through the syndrome. Tiffany and Patrick are watching him closely so at the first sign of the syndrome, they can get him to the hospital. Luckily, the syndrome usually only lasts a few days while the body fights through it. Fingers crossed it’s quick and mild!
The goal of CAR-T therapy is to get Paxton to MRD- so he can get his bone marrow transplant.
February 25, 2021
Paxton and Karly's last morning together for the next 28 days! Paxton heads out to spend the next month in Salt Lake City for his treatment plan.
March 4, 2021
As of today, we have sold 168 Marshall Strong shirts to help the Marshall family!!!! The first round has been shipped out, and we are gearing up to show baby Paxton some love for his 1st birthday on March 14.
March 12, 2021
After a very rough week at the hospital, Paxton's fever finally broke, he was able to get a little rest and he was able to break free and head back to the condo with mom!! Just in time for his birthday weekend!
HAPPY 1ST BIRTHDAY PAXTON!
March 21-28, 2021
Paxton had a very good week. He got to hang out with grandma for the week. Patrick and Karly came down early for pre-op tests and blood work for the upcoming transplant. Friday was a very long day full of appointments, but they were released and were able to head home on Saturday. The Marshall family was together for the weekend, able to spend Tiffany's birthday in the comfort of their own home. They are preparing for the long stay in Salt Lake City- prepping for the transplant and post transplant recovery totaling 115 days.
March 31, 2021
Brave Karly went in today for her bone marrow transplant extraction. Her doctors said she did GREAT! Paxton's transplant is still TBD at this time, but we hope in the next week.
April 3-4, 2021
Karly was a Rockstar this week!! She completed her bone marrow extract and did amazing! Recouped over the weekend and was back to her amazing self in time to spend the holiday with her family!!!
HAPPY EASTER EVERYONE!!!
April 2-6, 2021
Paxton spent his last day with his family before being admitted to the hospital.
Pax's bone marrow biopsy came back negative- which is what we were hoping for and clears him for transplant!!! :) bad news- he has a bump on his head, they decided to biopsy it last week and it came back with a mild amount of leukemia which means he can't transplant yet.
We had an appointment first thing Monday morning with the Radiation Oncology team. Our BMT thought he should get a few zaps of radiation to kill the bump.. nope, he now has 12 rounds of radiation starting Thursday. They also want to do a PET scan to make sure it is not hiding anywhere else in his body which would make the transplant pointless. The PET scan will be Wednesday.
The transplant has been delayed at least 3 weeks as of now.
April 10-11, 2021
Paxton has been doing really well with his treatments and is finally able to enjoy some good food.