Happy Easter!
Pax was able to go home and spend Easter with his family, and even did a great job through a photo shoot with sister!!
Through April 23, 2021
Pax has been doing fantastic through all of his radiation treatments. He is growing, eating like crazy, on the move constantly and trying to walk! He is growing like a weed and is doing great. Still waiting on information for the next steps to take.
April 27, 2021
Paxton has officially finished his radiation therapy!!!! Now we are heading to the transplant process!!
April 29, 2021
Paxton's bone marrow biopsy results came back negative, so he was admitted back into the hospital to begin his transplant process on Thursday evening. The process began bright and early Friday morning. Stay tuned for more news and updates regarding the start of his transplant!!
May 3, 2021
Paxton has chemotherapy treatments Monday-Wednesday this week, has a break on Thursday and will have his transplant on FRIDAY! The big day is getting closer and closer. He has been doing very well since being admitted to the hospital, eating and refusing sleep like a typical little boy! He is doing very well!
May 7, 2021
Today is Paxton's big transplant day!! He goes in this morning for his bone marrow transplant. All the prayers and well wishes are definitely appreciated!
May 7-14, 2021
Paxton's operation went perfectly. It was quick procedure, and he did great. He has been recovering all week, still in the hospital in Salt Lake City, but has been doing great!
May 27, 2021
Paxton was taken off the ventilator tonight! It was a very long 2 weeks but Paxton is a strong fighter and pushed through. His liver is still recovering, it's a slow process, but it is doing really well considering where it was a week ago. His numbers continue to improve, which is great!! The fluid build up in his stomach is gone, so we are hopeful the drain will be removed soon!
May 29-30 2021
Pax is still in the PICU while his body recovers from the past two weeks events, but he is doing well and we are starting to see glimpses of our pre-transplant sweet boy!!
Paxton is slowly getting back to his spunky self. It has been a very slow process, and a lot of hard work, but we are starting to see glimpses of sweet baby Paxton. Keep the prayers coming as we hope to be out of the PICU soon!
June 18, 2021
Paxton is still in the PICU, but he is finally able to have visitors!
June 22-24, 2021
Paxton contracted an infection in his ports. He ended up in surgery on Sunday June 20th to get all of his lines removed so they could get rid of the infection. His body was clear of infection and had surgery again Wednesday, June 23 to get new lines put in.
The did a bone marrow biopsy and a lumbar puncture to test for disease (cancer cells). This will be something they he will have done a few times over the next year to double check that there aren't and diseased cells hiding and trying to come back and take over. Last week they drew his blood for a chimerism test, which is to determine how much of Paxton's current blood is his and how much is from Karly.
Some results have come in-
Chimerism came back as 100% donor which means that all of the blood in his body is from Karly's bone marrow, which is the best possible result!
The flow report from his biopsy came back negative- no disease!!
The spinal fluid report came back negative- no disease!!
The last report is the slide results- where the pathologist actually looks at the biopsy sample under the microscope. We are waiting on results!
He still has VOD but hasn't gone through platelets as fast as the past few days, which hopefully is a good sign.
He is still on dialysis, but they are looking to put him on hemo-dialysis. That is short treatments that can be done in the oncology unit. He had a 3 hour treatment today and did GREAT!!!
Fingers crossed he continues to improve quickly!
June 27, 2021
After 45 LONG days, Paxton has finally been moved out of the PICU!!!
July 13, 2021
After 75 crazy long, emotional days, Paxton has finally been released from the hospital!! The family still has to stay down in Salt Lake City for the next 25 days. The 100 day timeline is still in effect, however the next few appointments will give a better idea what the next few months will look like.
July 24, 2021
Paxton made it 4 days out of the hospital until having to be readmitted. He had been having some stomach issues, not being able to handle food and it became a very big concern. Tiffany took him back, and he has been on multiple medications to help clear up his issues. Thoughts, love and prayers are always appreciated as he fights this long journey.
July 31, 2021
16 days after being readmitted, he is looking good. He is still hooked up to some IV medication and continues his feeding tube since he refuses to eat. He seems to be feeling much better, and his tummy issues have pretty much gone away. Just waiting on some of his IV medications to finish up so we can be released.
August 18, 2021
Paxton’s 100 day bone marrow biopsy showed that he had relapsed and his cancer was back. Because his specific mutation is rare and aggressive, the doctors said there wasn’t anything else that could be done for Paxton so Tiffany took him home to spend his last few weeks with his friends and family
September 1st 2021
Heaven has gained an Angel
Our precious Paxton gained his angel wings this past Wednesday night.
To say we are devastated doesn’t even begin to explain the heartbreak we feel. 
He was the sweetest, most loving little babes and we will forever cherish the 17 months we had with him. He was such a fighter!
We love and miss you so much, my sweet boy
Services
Funeral services will be Friday September 10, 2021 at 1PM at the Holiday Inn in Rock Springs, Wyoming.
Internment at the Rock Springs Cemetery followed by a Celebration of Life at Santa Fe Southwest Grill.
The Marshall family asked to please honor Paxton by wearing Paxton's Marshall Strong shirts or the color orange.
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